0.1.0 - ci-build

CQDG_FHIR_IG - Local Development build (v0.1.0) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions

: Ferlab.bio Example/cqdg-study - XML Representation

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<ResearchStudy xmlns="http://hl7.org/fhir">
  <id value="ResearchStudyExample"/>
  <meta>
    <profile
             value="https://fhir.cqdg.ca/StructureDefinition/cqdg-research-study"/>
    <profile value="http://hl7.org/fhir/StructureDefinition/ResearchStudy"/>
  </meta>
  <text>
    <status value="extensions"/>
    <div xmlns="http://www.w3.org/1999/xhtml"><p class="res-header-id"><b>Generated Narrative: ResearchStudy ResearchStudyExample</b></p><a name="ResearchStudyExample"> </a><a name="hcResearchStudyExample"> </a><a name="ResearchStudyExample-en-US"> </a><p><b>Ferlab.bio Extension/data-category</b>: <span title="Codes:{https://fhir.cqdg.ca/CodeSystem/data-category genomics}">Genomics</span></p><p><b>Ferlab.bio Extension/data-category</b>: <span title="Codes:{https://fhir.cqdg.ca/CodeSystem/data-category other}">Other</span></p><p><b>Ferlab.bio Extension/data-category</b>: <span title="Codes:{https://fhir.cqdg.ca/CodeSystem/study-design registry}">Registry</span></p><p><b>Ferlab.bio Extension/data-category</b>: <span title="Codes:{https://fhir.cqdg.ca/CodeSystem/study-design cohort}">Cohort</span></p><p><b>Ferlab.bio Extension/data-collection-method</b>: <span title="Codes:{https://fhir.cqdg.ca/CodeSystem/data-collection-method medical_records}">Medical Records</span></p><p><b>Ferlab.bio Extension/data-collection-method</b>: <span title="Codes:{https://fhir.cqdg.ca/CodeSystem/data-collection-method investigator_assessment}">Investigator Assessment</span></p><p><b>Restricted</b>: false</p><p><b>Ferlab.bio Extension/access-limitations</b>: [not stated] DUO:0000005: obsolete general research use and clinical care</p><p><b>Ferlab.bio Extension/access-requirement</b>: [not stated] DUO:0000019: publication required</p><p><b>Ferlab.bio Extension/access-requirement</b>: [not stated] $DUO:0000021: ethics approval required</p><p><b>Ferlab.bio Extension/access-requirement</b>: [not stated] $DUO:0000025: time limit on use</p><p><b>Ferlab.bio Extension/access-requirement</b>: [not stated] DUO:0000026: user specific restriction</p><p><b>Ferlab.bio Extension/access-requirement</b>: [not stated] DUO:0000027: project specific restriction</p><p><b>Ferlab.bio Extension/access-requirement</b>: [not stated] DUO:0000029: return to database or resource</p><blockquote><p><b>Ferlab.bio Extension/dataset</b></p><ul><li>name: Dataset 1</li><li>description: Dataset 1 description</li></ul></blockquote><blockquote><p><b>Ferlab.bio Extension/dataset</b></p><ul><li>name: Dataset 2</li><li>description: Dataset 2 description</li></ul></blockquote><blockquote><p><b>Ferlab.bio Extension/expectedStudyContent</b></p><ul><li>expectedNumberParticipants: 22</li><li>expectedNumberBiospecimens: 22</li><li>expectedNumberFiles: 22</li><li>restrictedNumberParticipants: 3</li><li>restrictedNumberBiospeciment: 4</li><li>restrictedNumberFiles: 5</li></ul></blockquote><p><b>identifier</b>: <code>https://fhir.cqdg.ca/fhir/ResearchStudy</code>/ResearchStudyExample, CAG (use: secondary, )</p><p><b>title</b>: CARTaGENE</p><p><b>status</b>: Completed</p><p><b>category</b>: <span title="Codes:{https://fhir.cqdg.ca/CodeSystem/study-domain General Health}">General Health</span></p><p><b>contact</b>: TBD: <a href="https://sdas.cartagene.qc.ca">https://sdas.cartagene.qc.ca</a></p><p><b>keyword</b>: <span title="Codes:">genomics</span>, <span title="Codes:">chronic conditions</span>, <span title="Codes:">population-based cohort</span>, <span title="Codes:">survey data</span></p><p><b>description</b>: </p><div><p>CARTaGENE is a public research platform of the CHU Sainte-Justine created to accelerate health research. CARTaGENE consists of both biological samples and health data from 43,000 Qu√©bec residents aged between 40 to 69 years.</p>
</div></div>
  </text>
  <extension
             url="https://fhir.cqdg.ca/StructureDefinition/DataCategoryExtension">
    <valueCodeableConcept>
      <coding>
        <system value="https://fhir.cqdg.ca/CodeSystem/data-category"/>
        <code value="genomics"/>
      </coding>
    </valueCodeableConcept>
  </extension>
  <extension
             url="https://fhir.cqdg.ca/StructureDefinition/StudyDesignExtension">
    <valueCodeableConcept>
      <coding>
        <system value="https://fhir.cqdg.ca/CodeSystem/study-design"/>
        <code value="registry"/>
      </coding>
    </valueCodeableConcept>
  </extension>
  <extension
             url="https://fhir.cqdg.ca/StructureDefinition/DataCollectionMethodExtension">
    <valueCodeableConcept>
      <coding>
        <system
                value="https://fhir.cqdg.ca/CodeSystem/data-collection-method"/>
        <code value="medical_records"/>
      </coding>
    </valueCodeableConcept>
  </extension>
  <extension url="https://fhir.cqdg.ca/StructureDefinition/Restricted">
    <valueBoolean value="false"/>
  </extension>
  <extension
             url="https://fhir.cqdg.ca/StructureDefinition/AccessLimitations">
    <valueCoding>
      <code value="DUO:0000005"/>
      <display value="obsolete general research use and clinical care"/>
    </valueCoding>
  </extension>
  <extension
             url="https://fhir.cqdg.ca/StructureDefinition/AccessRequirements">
    <valueCoding>
      <code value="DUO:0000019"/>
      <display value="publication required"/>
    </valueCoding>
  </extension>
  <extension
             url="https://fhir.cqdg.ca/StructureDefinition/AccessRequirements">
    <valueCoding>
      <code value="$DUO:0000021"/>
      <display value="ethics approval required"/>
    </valueCoding>
  </extension>
  <extension
             url="https://fhir.cqdg.ca/StructureDefinition/AccessRequirements">
    <valueCoding>
      <code value="$DUO:0000025"/>
      <display value="time limit on use"/>
    </valueCoding>
  </extension>
  <extension
             url="https://fhir.cqdg.ca/StructureDefinition/AccessRequirements">
    <valueCoding>
      <code value="DUO:0000026"/>
      <display value="user specific restriction"/>
    </valueCoding>
  </extension>
  <extension
             url="https://fhir.cqdg.ca/StructureDefinition/AccessRequirements">
    <valueCoding>
      <code value="DUO:0000027"/>
      <display value="project specific restriction"/>
    </valueCoding>
  </extension>
  <extension
             url="https://fhir.cqdg.ca/StructureDefinition/AccessRequirements">
    <valueCoding>
      <code value="DUO:0000029"/>
      <display value="return to database or resource"/>
    </valueCoding>
  </extension>
  <extension url="https://fhir.cqdg.ca/StructureDefinition/dataset">
    <extension url="name">
      <valueString value="Dataset 1"/>
    </extension>
    <extension url="description">
      <valueString value="Dataset 1 description"/>
    </extension>
  </extension>
  <extension url="https://fhir.cqdg.ca/StructureDefinition/dataset">
    <extension url="name">
      <valueString value="Dataset 2"/>
    </extension>
    <extension url="description">
      <valueString value="Dataset 2 description"/>
    </extension>
  </extension>
  <extension
             url="https://fhir.cqdg.ca/StructureDefinition/ResearchStudy/ExpectedContent">
    <extension url="expectedNumberParticipants">
      <valueInteger value="22"/>
    </extension>
    <extension url="expectedNumberBiospecimens">
      <valueInteger value="22"/>
    </extension>
    <extension url="expectedNumberFiles">
      <valueInteger value="22"/>
    </extension>
    <extension url="restrictedNumberParticipants">
      <valueInteger value="3"/>
    </extension>
    <extension url="restrictedNumberBiospeciment">
      <valueInteger value="4"/>
    </extension>
    <extension url="restrictedNumberFiles">
      <valueInteger value="5"/>
    </extension>
  </extension>
  <extension
             url="https://fhir.cqdg.ca/StructureDefinition/DataCategoryExtension">
    <valueCodeableConcept>
      <coding>
        <system value="https://fhir.cqdg.ca/CodeSystem/data-category"/>
        <code value="other"/>
      </coding>
    </valueCodeableConcept>
  </extension>
  <extension
             url="https://fhir.cqdg.ca/StructureDefinition/StudyDesignExtension">
    <valueCodeableConcept>
      <coding>
        <system value="https://fhir.cqdg.ca/CodeSystem/study-design"/>
        <code value="cohort"/>
      </coding>
    </valueCodeableConcept>
  </extension>
  <extension
             url="https://fhir.cqdg.ca/StructureDefinition/DataCollectionMethodExtension">
    <valueCodeableConcept>
      <coding>
        <system
                value="https://fhir.cqdg.ca/CodeSystem/data-collection-method"/>
        <code value="investigator_assessment"/>
      </coding>
    </valueCodeableConcept>
  </extension>
  <identifier>
    <system value="https://fhir.cqdg.ca/fhir/ResearchStudy"/>
    <value value="ResearchStudyExample"/>
  </identifier>
  <identifier>
    <use value="secondary"/>
    <value value="CAG"/>
  </identifier>
  <title value="CARTaGENE"/>
  <status value="completed"/>
  <category>
    <coding>
      <system value="https://fhir.cqdg.ca/CodeSystem/study-domain"/>
      <code value="General Health"/>
      <display value="General Health"/>
    </coding>
  </category>
  <contact>
    <name value="TBD"/>
    <telecom>
      <system value="url"/>
      <value value="https://sdas.cartagene.qc.ca"/>
    </telecom>
  </contact>
  <keyword>
    <text value="genomics"/>
  </keyword>
  <keyword>
    <text value="chronic conditions"/>
  </keyword>
  <keyword>
    <text value="population-based cohort"/>
  </keyword>
  <keyword>
    <text value="survey data"/>
  </keyword>
  <description
               value="CARTaGENE is a public research platform of the CHU Sainte-Justine created to accelerate health research. CARTaGENE consists of both biological samples and health data from 43,000 Québec residents aged between 40 to 69 years."/>
</ResearchStudy>