0.1.0 - ci-build
CQDG_FHIR_IG - Local Development build (v0.1.0) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions
{
"resourceType" : "ResearchStudy",
"id" : "ResearchStudyExample",
"meta" : {
"profile" : [
🔗 "https://fhir.cqdg.ca/StructureDefinition/cqdg-research-study"🔗 ,
"http://hl7.org/fhir/StructureDefinition/ResearchStudy"
]
},
"text" : {
"status" : "extensions",
"div" : "<div xmlns=\"http://www.w3.org/1999/xhtml\"><p class=\"res-header-id\"><b>Generated Narrative: ResearchStudy ResearchStudyExample</b></p><a name=\"ResearchStudyExample\"> </a><a name=\"hcResearchStudyExample\"> </a><a name=\"ResearchStudyExample-en-US\"> </a><p><b>Ferlab.bio Extension/data-category</b>: <span title=\"Codes:{https://fhir.cqdg.ca/CodeSystem/data-category genomics}\">Genomics</span></p><p><b>Ferlab.bio Extension/data-category</b>: <span title=\"Codes:{https://fhir.cqdg.ca/CodeSystem/data-category other}\">Other</span></p><p><b>Ferlab.bio Extension/data-category</b>: <span title=\"Codes:{https://fhir.cqdg.ca/CodeSystem/study-design registry}\">Registry</span></p><p><b>Ferlab.bio Extension/data-category</b>: <span title=\"Codes:{https://fhir.cqdg.ca/CodeSystem/study-design cohort}\">Cohort</span></p><p><b>Ferlab.bio Extension/data-collection-method</b>: <span title=\"Codes:{https://fhir.cqdg.ca/CodeSystem/data-collection-method medical_records}\">Medical Records</span></p><p><b>Ferlab.bio Extension/data-collection-method</b>: <span title=\"Codes:{https://fhir.cqdg.ca/CodeSystem/data-collection-method investigator_assessment}\">Investigator Assessment</span></p><p><b>Restricted</b>: false</p><p><b>Ferlab.bio Extension/access-limitations</b>: [not stated] DUO:0000005: obsolete general research use and clinical care</p><p><b>Ferlab.bio Extension/access-requirement</b>: [not stated] DUO:0000019: publication required</p><p><b>Ferlab.bio Extension/access-requirement</b>: [not stated] $DUO:0000021: ethics approval required</p><p><b>Ferlab.bio Extension/access-requirement</b>: [not stated] $DUO:0000025: time limit on use</p><p><b>Ferlab.bio Extension/access-requirement</b>: [not stated] DUO:0000026: user specific restriction</p><p><b>Ferlab.bio Extension/access-requirement</b>: [not stated] DUO:0000027: project specific restriction</p><p><b>Ferlab.bio Extension/access-requirement</b>: [not stated] DUO:0000029: return to database or resource</p><blockquote><p><b>Ferlab.bio Extension/dataset</b></p><ul><li>name: Dataset 1</li><li>description: Dataset 1 description</li></ul></blockquote><blockquote><p><b>Ferlab.bio Extension/dataset</b></p><ul><li>name: Dataset 2</li><li>description: Dataset 2 description</li></ul></blockquote><blockquote><p><b>Ferlab.bio Extension/expectedStudyContent</b></p><ul><li>expectedNumberParticipants: 22</li><li>expectedNumberBiospecimens: 22</li><li>expectedNumberFiles: 22</li><li>restrictedNumberParticipants: 3</li><li>restrictedNumberBiospeciment: 4</li><li>restrictedNumberFiles: 5</li></ul></blockquote><p><b>identifier</b>: <code>https://fhir.cqdg.ca/fhir/ResearchStudy</code>/ResearchStudyExample, CAG\u00a0(use:\u00a0secondary,\u00a0)</p><p><b>title</b>: CARTaGENE</p><p><b>status</b>: Completed</p><p><b>category</b>: <span title=\"Codes:{https://fhir.cqdg.ca/CodeSystem/study-domain General Health}\">General Health</span></p><p><b>contact</b>: TBD: <a href=\"https://sdas.cartagene.qc.ca\">https://sdas.cartagene.qc.ca</a></p><p><b>keyword</b>: <span title=\"Codes:\">genomics</span>, <span title=\"Codes:\">chronic conditions</span>, <span title=\"Codes:\">population-based cohort</span>, <span title=\"Codes:\">survey data</span></p><p><b>description</b>: </p><div><p>CARTaGENE is a public research platform of the CHU Sainte-Justine created to accelerate health research. CARTaGENE consists of both biological samples and health data from 43,000 Québec residents aged between 40 to 69 years.</p>\n</div></div>"
},
"extension" : [
{
"url" : "https://fhir.cqdg.ca/StructureDefinition/DataCategoryExtension",
"valueCodeableConcept" : {
"coding" : [
{
"system" : "https://fhir.cqdg.ca/CodeSystem/data-category",
"code" : "genomics"
}
]
}
},
{
"url" : "https://fhir.cqdg.ca/StructureDefinition/StudyDesignExtension",
"valueCodeableConcept" : {
"coding" : [
{
"system" : "https://fhir.cqdg.ca/CodeSystem/study-design",
"code" : "registry"
}
]
}
},
{
"url" : "https://fhir.cqdg.ca/StructureDefinition/DataCollectionMethodExtension",
"valueCodeableConcept" : {
"coding" : [
{
"system" : "https://fhir.cqdg.ca/CodeSystem/data-collection-method",
"code" : "medical_records"
}
]
}
},
{
"url" : "https://fhir.cqdg.ca/StructureDefinition/Restricted",
"valueBoolean" : false
},
{
"url" : "https://fhir.cqdg.ca/StructureDefinition/AccessLimitations",
"valueCoding" : {
"code" : "DUO:0000005",
"display" : "obsolete general research use and clinical care"
}
},
{
"url" : "https://fhir.cqdg.ca/StructureDefinition/AccessRequirements",
"valueCoding" : {
"code" : "DUO:0000019",
"display" : "publication required"
}
},
{
"url" : "https://fhir.cqdg.ca/StructureDefinition/AccessRequirements",
"valueCoding" : {
"code" : "$DUO:0000021",
"display" : "ethics approval required"
}
},
{
"url" : "https://fhir.cqdg.ca/StructureDefinition/AccessRequirements",
"valueCoding" : {
"code" : "$DUO:0000025",
"display" : "time limit on use"
}
},
{
"url" : "https://fhir.cqdg.ca/StructureDefinition/AccessRequirements",
"valueCoding" : {
"code" : "DUO:0000026",
"display" : "user specific restriction"
}
},
{
"url" : "https://fhir.cqdg.ca/StructureDefinition/AccessRequirements",
"valueCoding" : {
"code" : "DUO:0000027",
"display" : "project specific restriction"
}
},
{
"url" : "https://fhir.cqdg.ca/StructureDefinition/AccessRequirements",
"valueCoding" : {
"code" : "DUO:0000029",
"display" : "return to database or resource"
}
},
{
"extension" : [
{
"url" : "name",
"valueString" : "Dataset 1"
},
{
"url" : "description",
"valueString" : "Dataset 1 description"
}
],
"url" : "https://fhir.cqdg.ca/StructureDefinition/dataset"
},
{
"extension" : [
{
"url" : "name",
"valueString" : "Dataset 2"
},
{
"url" : "description",
"valueString" : "Dataset 2 description"
}
],
"url" : "https://fhir.cqdg.ca/StructureDefinition/dataset"
},
{
"extension" : [
{
"url" : "expectedNumberParticipants",
"valueInteger" : 22
},
{
"url" : "expectedNumberBiospecimens",
"valueInteger" : 22
},
{
"url" : "expectedNumberFiles",
"valueInteger" : 22
},
{
"url" : "restrictedNumberParticipants",
"valueInteger" : 3
},
{
"url" : "restrictedNumberBiospeciment",
"valueInteger" : 4
},
{
"url" : "restrictedNumberFiles",
"valueInteger" : 5
}
],
"url" : "https://fhir.cqdg.ca/StructureDefinition/ResearchStudy/ExpectedContent"
},
{
"url" : "https://fhir.cqdg.ca/StructureDefinition/DataCategoryExtension",
"valueCodeableConcept" : {
"coding" : [
{
"system" : "https://fhir.cqdg.ca/CodeSystem/data-category",
"code" : "other"
}
]
}
},
{
"url" : "https://fhir.cqdg.ca/StructureDefinition/StudyDesignExtension",
"valueCodeableConcept" : {
"coding" : [
{
"system" : "https://fhir.cqdg.ca/CodeSystem/study-design",
"code" : "cohort"
}
]
}
},
{
"url" : "https://fhir.cqdg.ca/StructureDefinition/DataCollectionMethodExtension",
"valueCodeableConcept" : {
"coding" : [
{
"system" : "https://fhir.cqdg.ca/CodeSystem/data-collection-method",
"code" : "investigator_assessment"
}
]
}
}
],
"identifier" : [
{
"system" : "https://fhir.cqdg.ca/fhir/ResearchStudy",
"value" : "ResearchStudyExample"
},
{
"use" : "secondary",
"value" : "CAG"
}
],
"title" : "CARTaGENE",
"status" : "completed",
"category" : [
{
"coding" : [
{
"system" : "https://fhir.cqdg.ca/CodeSystem/study-domain",
"code" : "General Health",
"display" : "General Health"
}
]
}
],
"contact" : [
{
"name" : "TBD",
"telecom" : [
{
"system" : "url",
"value" : "https://sdas.cartagene.qc.ca"
}
]
}
],
"keyword" : [
{
"text" : "genomics"
},
{
"text" : "chronic conditions"
},
{
"text" : "population-based cohort"
},
{
"text" : "survey data"
}
],
"description" : "CARTaGENE is a public research platform of the CHU Sainte-Justine created to accelerate health research. CARTaGENE consists of both biological samples and health data from 43,000 Québec residents aged between 40 to 69 years."
}