0.1.0 - ci-build

CQDG_FHIR_IG - Local Development build (v0.1.0) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions

Example ResearchStudy: Ferlab.bio Example/cqdg-study

Generated Narrative: ResearchStudy ResearchStudyExample

Ferlab.bio Extension/data-category: Genomics

Ferlab.bio Extension/data-category: Other

Ferlab.bio Extension/data-category: Registry

Ferlab.bio Extension/data-category: Cohort

Ferlab.bio Extension/data-collection-method: Medical Records

Ferlab.bio Extension/data-collection-method: Investigator Assessment

Restricted: false

Ferlab.bio Extension/access-limitations: [not stated] DUO:0000005: obsolete general research use and clinical care

Ferlab.bio Extension/access-requirement: [not stated] DUO:0000019: publication required

Ferlab.bio Extension/access-requirement: [not stated] $DUO:0000021: ethics approval required

Ferlab.bio Extension/access-requirement: [not stated] $DUO:0000025: time limit on use

Ferlab.bio Extension/access-requirement: [not stated] DUO:0000026: user specific restriction

Ferlab.bio Extension/access-requirement: [not stated] DUO:0000027: project specific restriction

Ferlab.bio Extension/access-requirement: [not stated] DUO:0000029: return to database or resource

Ferlab.bio Extension/dataset

  • name: Dataset 1
  • description: Dataset 1 description

Ferlab.bio Extension/dataset

  • name: Dataset 2
  • description: Dataset 2 description

Ferlab.bio Extension/expectedStudyContent

  • expectedNumberParticipants: 22
  • expectedNumberBiospecimens: 22
  • expectedNumberFiles: 22
  • restrictedNumberParticipants: 3
  • restrictedNumberBiospeciment: 4
  • restrictedNumberFiles: 5

identifier: https://fhir.cqdg.ca/fhir/ResearchStudy/ResearchStudyExample, CAG (use: secondary, )

title: CARTaGENE

status: Completed

category: General Health

contact: TBD: https://sdas.cartagene.qc.ca

keyword: genomics, chronic conditions, population-based cohort, survey data

description:

CARTaGENE is a public research platform of the CHU Sainte-Justine created to accelerate health research. CARTaGENE consists of both biological samples and health data from 43,000 Québec residents aged between 40 to 69 years.